DNA, Health, Eugenics and You

Things seem to be moving along at record speed lately. I strongly recommend the reading of Junkfood Science Blog by Sandy Szwarc. She gives a wonderful perspective from the average citizens view with the knowledge gleamed from her health & medical profession.

Sandy has done several pieces regarding the collection of our medical records and DNA. I’ll provide the links to the individual stories at the end here.

First though is her latest on the collecting of DNA information. I’m sure this is a good idea on one hand; however, the other side of the coin tells me that knowing how greedy insurance companies and hospitals are about making money, you can bet the farm that these new databases WILL be abused.

March 25, 2008

Do you know how your genetic information could be used? You may be surprised!

Despite the seeming lax attitudes of some towards protecting our genetic data and the information obtained from genetic screening, that’s not what the public wants. Two new reports this week on the use of genetic information from human genome research describe ethical and social concerns that you may never have considered.

A March 2007 survey by Johns Hopkins Genetics and Public Policy Center found that 86% of Americans trust their doctor with their genetic information, but they do not trust health insurers or employers not to misuse the information (whether by disclosing it or discriminating against them). Some genetic researchers fear that these concerns could potentially harm patients who might benefit from genetic testing or might restrict participation in research and hinder advances in medical and scientific knowledge.

The American College of Physicians released a policy paper yesterday on genetic discrimination, with some insightful information for healthcare professionals and consumers. The American College of Physicians described some of the misconceptions surroundings beliefs that HIPAA (Health Insurance Portability and Accountability Act of 1996) protects the privacy of genetic information.:

Read the FULL STORY HERE.

I’m one of those people in the second paragraph. I don’t trust the government or any health insurance company, etc with my personal information anymore. I’m even quite leary of doctors these days, as far too many seem to be nothing more than Big Pharma shills. My experience has been that very few doctors, and I do mean very few, really listen to the patient. They only know what some book or insurance company or drug company tells them. Far too many don’t view patients as individuals with different reactions to the same things. And far too many STILL think females are hypochondriacs. I got so sick of a doctor’s patronizing tone that I told him off right there and then and informed him that he could continue as he was and have me report him OR he could listen to me and actually practice his chosen path. In the end he listened to me. Sometimes you just have to remind them that we are humans and while the patient may not be able to diagnose themselves, many really do know their own bodies and how to listen to it. They need to be reminded that not everyone is a “text book” case.

What disturbs me is this new trend of drawing blood from newborns to test for predisposition to certain ailments/diseases. Again, the reasons for this that they give are good; but we all know that insurance companies WILL use that information to deny coverage down the road.

Earlier this month Sandy posted this to her Junkfood Science blog:

Do you own what makes you, you? Or, does the government?

Important news was issued yesterday on the legislative battle over the State collection of genetic material on newborn babies to use for government-endorsed genetic research without parents’ consent. Last night, the Minnesota Senate Judiciary Committee voted against consent rights (ownership) of infant blood and DNA, reported Twila Brase, RN, President of the Citizens’ Council on Health Care. That means DNA material on children can be stored and used by the government or third parties without the consent of parents. The bill (SF 3138) now goes to the Senate for a full vote.

This is a complicated issue of medical ethics and privacy, public health over individual rights, the integrity and advancement of science, genetic discrimination, and the potential abuses of genetic information by the state. As reported last year, the CCHC had discovered that for ten years, the Minnesota Department of Health had been illegally collecting DNA material on at least 780,000 babies which it was storing indefinitely, and has already given away the material on more than 41,000 babies for genetic research, all without the knowledge or consent of parents. Since then, the CCHC has been working for informed consent and arguing that the state cannot take or use genetic material without parents’ consent. The CCHC has cautioned that the state’s genetic database will soon be linked electronically to its medical database, with a permanent impact on patient records and genetic profiling that could be used against people by insurers or employers. Few parents are even told of their rights or given the option to opt-out of testing or allow testing, but require the blood sample to then be destroyed and not retained by the state.

Read the FULL STORY HERE.

More articles by Sandy on this subject that I recommend you read:

DNA warehouse legislation update

“The New Tuskegee”

More grabs for private medical records

Benefits with strings attached

Google Health update — A new Google World

Now, you can just see insurance companies ignoring the data that your child MIGHT be predisposed to diabetes, can’t you? NOT!! You know damned well they will consider it a pre-existing condition, and I’m sure they’ll find a way around any ‘anti-discrimination’ laws that may be passed to prevent that occurance, to deny health coverage OR to charge a much higher premium.

And don’t think for one moment that this government will also not find good use of this information. The first thing that comes to my mind is “eugenics“….and it wouldn’t be the first time the U.S. has practiced this despicable thing. What? You thought it was only the Nazi’s who did that? Unfortunately they were not the first, nor the last. They were just the most visable.

Eugenics and the United States, 1890s–1945

Nor does it appear that anyone plans on stopping. Check this out.

F U T U R E
G E N E R A T I O N S

last updated March 20, 2008

Future Generations is about humanitarian eugenics.
Humanitarian eugenics strives to leave a genuine legacy
of love to future generations: good health, high intelligence, and noble character. We advocate measures to improve the innate quality of humankind which are entirely voluntary. Please be forewarned that most ideas expressed on this website are “politically incorrect.” We aspire to total honesty, believing that it is the only policy for people with integrity, and furthermore, that in the long run, honesty is far-and-away the most compassionate policy. If we ever hope to solve the problems which face our species, it’s imperative that we first look at them objectively, and assess the scientific evidence without bias. If the truth about genetics and behavior, about eugenics, or about race, is considered “taboo,” and falsehoods are the only socially acceptable opinions, then this is truly a sad state of affairs, but we won’t let it deter us.

TABLE OF CONTENTS

The Case for Eugenics in a Nutshell, by Marian Van Court
(Dutch trans. added, 12/08/05)
(Romanian trans., added 3/20/08)

IQ Will Put You In Your Place, by Charles Murray

The Consequences of Variable Intelligence: a review by Tatu VanhanenReproduction Technology for a New Eugenics, By Glayde Whitney

Eugenics: Economics for the Long Run, by Edward M. Miller

Intelligence and Fertility in the United States: 1912 – 1982,by Marian Van Court and Frank D. Bean

There is much more there, I just gave you a few of the contents. Contrary to what this site says, do you really believe it won’t be used to create some brave new world utopia by some unscrupulous people? Oh sure they want to eradicate disease and death. The question is HOW? The movie Demolition Man comes to mind immediately.

Technology is a wonderful thing, I cannot deny that. However, our technological advances could get so far ahead of our moral and spiritual states that we do more harm than good. Too many people seem to have some “God complex” and wish to force the world into compliance to their view.

Look at the world today. Seriously! If you don’t think there is deviousness to what is happening, then you drank too much of the Kool-Aid.

I, for one, don’t like where I see things going.

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~ by swfreedomlover on March 30, 2008.

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